"A rare disease is any disease that affects a small percentage of the population. In some parts of the world, an orphan disease is a rare disease whose rarity means there is a lack of a market large enough to gain support and resources for discovering treatments for it, except by the government granting economically advantageous conditions to creating and selling such treatments. Orphan drugs are ones so created or sold.

 

 

Most rare diseases are genetic and thus are present throughout the person's entire life, even if symptoms do not immediately appear. Many rare diseases appear early in life, and about 30% of children with rare diseases will die before reaching their fifth birthday.[1] With only three diagnosed patients in 27 years, ribose-5-phosphate isomerase deficiency is considered the rarest known genetic disease.[2]

 

No single cut-off number has been agreed upon for which a disease is considered rare. A disease may be considered rare in one part of the world, or in a particular group of people, but still be common in another.

 

The US organisation Global Genes has estimated that more than 300 million people worldwide are living with one of the approximately 7,000 diseases they define as "rare" in the United States".-wikipedia

Eosinophilic Disease

Eosinophils are a type of white blood cell. They help fight off infections and play a role in your body's immune response. They can also build up and cause inflammation.

Normally your blood doesn't have a large number of eosinophils. Your body may produce more of them in response to

WHAT WE DO

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EOE

01/19 - 01/23

WHAT IS EOE?
Eosinophilic Gastrointestinal Disorder (EGID) is a complicated digestive system disorder in which eosinophils, a type of white blood cell, are found in...

BULLYING

01/19 - 01/23

Food Allergy Bullying
According to a recent study, more than one third of children and teens with food allergies (ages 8-17), reported being bullied specifically because...

RARE DISEASES

01/19 - 01/23

There are approximately 7,000 different types of rare diseases and disorders, with more being discovered each day...

RECIPES

RECIPES

Ingredients:
4-5 Potatoes
Duck Fat or Coconut Oil ( Depending on ALlergies) Duck Fat is Yummy
Salt
Use 1 Jar of Duck Fat or 2 Cups of Coconut Oil in Med Fry Pan
Slice Potatoes into Thin French Fries

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